News & events

News

Country visit videos now online

Screenshot of UK visit video

Over the last few months B1MG project partners virtually visited three countries with well-established genomic medicine programmes: the UK, Estonia and Finland.

The video of these visits are now online. See the Resources section.

The visits aimed to better understand how to implement genomic medicine in healthcare across Europe. They also promoted knowledge exchange, with several 1+Million Genome Initiative (1+MG) member states taking the opportunity to present their progress.

The visits also included flash talks from Belgium, Bulgaria, Denmark, Hungary, Latvia, Lithuania, Portugal, Spain and Sweden.

You can also find details of the visits in the ELIXIR news story.

Posted 17 August 2021

Five project deliverables published

Five deliverables from the project have just been published:

Posted 7 June 2021

New B1MG newsletter released

The April 2021 edition of the B1MG newsletter has just been released. You can read a report from the first B1MG country visit, plus news about Denmark joining the 1+MG initiative and information about the Genome of Europe proposal.

Read the April 2021 newsletter

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Posted 8 April 2021

Professor emeritus Gert-Jan van Ommen (1947-2020)

Gert-Jan van Ommen

With great sadness we learned that our admired colleague Gert-Jan van Ommen passed away last weekend, Saturday 7 November.

As Professor in Human Genetics and head of the Department of Human Genetics of Leiden University Medical Center (LUMC) from 1992-2012, Gert-Jan has greatly contributed to the Dutch and international human genetics and genomics field. He was driven by research into the biology of rare diseases, employing the most advanced technologies in research and therapy development. He inspired many international colleagues and young researchers to improve healthcare and make scientific discoveries work for patients.

Gert-Jan had a great interest in the ethical, legal and societal aspects of genome science, and in public and professional communication. He was Editor-in-chief of the European Journal of Human Genetics, has been president of the Human Genome Organisation (1998-2000) and of the Dutch (1993-2000) and European (2003-2004) Societies of Human Genetics. Beyond his personal scientific work, Gert-Jan was particularly involved in development of the national and international research infrastructure in the human genetics field, such as in the field of biobanking. Gert-Jan had a great ability to bring together people with opposing viewpoints, and he was a ‘mentor’ to many colleagues.

As a strong advocate for sharing and using genetic information, Gert-Jan has been one of the driving forces behind the Dutch participation in the European 1+ Million Genomes initiative. Despite his retirement and severe disease, he has been highly involved in the 1+MG initiative in several ways. Even until just a few weeks ago he was an active member of the 1+MG Coordination Group. Until the very end he remained committed to the 1+MG goals and process to foster European collaboration in the implementation of genome-based health.

We have lost a great, amiable man who always kept up the good spirit in conversations through a catchy phrase. We will miss him dearly.

We would like to extend our sincerest sympathy to his wife, friends and colleagues.

Posted 11 November 2020

The B1MG Stakeholder Portal launches

The Stakeholder Coordination Portal is now live. The portal allows you to exchange ideas and connect to other stakeholders and Work Package leaders in the project. It is a way the B1MG Stakeholder Coordination Group can involve experts from relevant groups (see Work Package 1). The aim is to create a vibrant community that will work together to improve the project outcomes.

A screenshot of the stakeholder portal
Register for the portal

Stakeholders include the following groups:

  • Citizens and patient organisations
  • Clinicians, medical specialists
  • Academics
  • Medicines authorities (EU/EMA and national level)
  • HTA bodies
  • Funders
  • Industry (diagnostic, pharmaceutical, ICT)
  • National policy/decision makers
  • Infrastructures
  • EU Joint Actions

If you belong to one of these groups please register. Once you have registered you will be added to the Stakeholder Portal, then you can:

  • Join some of the project workshops (as external experts).
  • Act as an early reviewer, and review the initial drafts of the project recommendations.
  • Act as a validator, and review the mature draft of the project outputs.
  • Get access to relevant documents for the project.
  • Be linked to other relevant actions and activities at a pan-European level.

Posted 19 October 2020

The Beyond 1 Million Genomes project begins

The B1MG project launched in June 2020. See the news story on the ELIXIR website.

Posted 4 June 2020

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Events

The table below shows the events planned for the duration of the project. Details will be announced closer to the date of each event.

Date Name WP Organiser
June 2020 B1MG Kick-off
Outcome: All the project board mobilised. Review and agree plan for the year ahead.
WP6/All ELIXIR Hub
October 2020 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EAPM
January 2021 B1MG Personalised Medicine Delivery (country visit)
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 University of Tartu
March 2021 B1MG Secure Cross-Border Technical infrastructure
Outcome: Synthetic human datasets for safe cross- border testing.
WP4 Uppsala University
April 2021 B1MG Personalised Medicine Delivery. Country Visit 2
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 ELIXIR Hub
October 2020 B1MG Personalised Medicine Delivery. Country Visit 3
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 INSA
June 2021 B1MG Secure Cross-Border Technical infrastructure
B1MG-OG F2F meeting

Outcome: Security on federated data access processes.
WP4, WP6 CSC
June 2021 B1MG ELSI Stakeholder Workshop
Outcome: Security on federated data access processes.
WP2 ECRIN
September 2021 B1MG Personalised Medicine Delivery. Workshop 1
Outcome: Capacity building: B1MG Maturity level model, indicators, processes.
WP5, WP6 INSA
September 2021 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EMBL
September 2021 B1MG Secure Cross-Border Technical infrastructure
Outcome: Synchronicity between regulation and technology.
WP4 CNRS
November 2021 B1MG Personalised Medicine Delivery. Workshop 2
Outcome: Capacity building: Harmonising economic evaluation models. Sustainability.
WP5, WP6 DTL Projects
November 2021 B1MG Summit Open event
B1MG GA meeting

Outcome: Open consultation with internal and external stakeholders; GA meeting. Review and agreed plan for the second half of the project; EC review meeting.
WP6 (All) ELIXIR Hub
November 2021 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EAPM
December 2021 B1MG EC review meeting
Outcome: Review project progress and preparation for the B1MG summit and the mid-term review; EC review meeting.
WP6 (All) ELIXIR Hub
January 2022 B1MG-OG F2F meeting
Outcome: Review EC feedback. Review and agree a plan for the second-half of the project.
WP6 (All) ELIXIR Hub
March 2022 B1MG Secure Cross-Border Technical infrastructure
Outcome: Identify the barriers: existing cross-border data discovery and access solutions.
WP4 CRG
September 2022 B1MG Secure Cross-Border Technical infrastructure
Outcome: Interfaces for cross-border interoperable services.
WP4 University of Milan
December 2022 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EMBL
March 2023 B1MG Secure Cross-Border Technical infrastructure
Outcome: Healthcare and genomes - capacity building for Europe.
WP4 University of Ljubljana
June 2023 B1MG Final Review
Outcome: Final project review meeting.
WP6 (All) ELIXIR Hub

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