News & events

News

The B1MG Stakeholder Portal launches

The Stakeholder Coordination Portal is now live. The portal allows you to exchange ideas and connect to other stakeholders and Work Package leaders in the project. It is a way the B1MG Stakeholder Coordination Group can involve experts from relevant groups (see Work Package 1). The aim is to create a vibrant community that will work together to improve the project outcomes.

A screenshot of the stakeholder portal
Register for the portal

Stakeholders include the following groups:

  • Citizens and patient organisations
  • Clinicians, medical specialists
  • Academics
  • Medicines authorities (EU/EMA and national level)
  • HTA bodies
  • Funders
  • Industry (diagnostic, pharmaceutical, ICT)
  • National policy/decision makers
  • Infrastructures
  • EU Joint Actions

If you belong to one of these groups please register. Once you have registered you will be added to the Stakeholder Portal, then you can:

  • Join some of the project workshops (as external experts).
  • Act as an early reviewer, and review the initial drafts of the project recommendations.
  • Act as a validator, and review the mature draft of the project outputs.
  • Get access to relevant documents for the project.
  • Be linked to other relevant actions and activities at a pan-European level.

Posted 19 October 2020

The Beyond 1 Million Genomes project begins

The B1MG project launched in June 2020. See the news story on the ELIXIR website.

Posted 4 June 2020

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Events

The table below shows the events planned for the duration of the project. Details will be announced closer to the date of each event.

Date Name WP Organiser
June 2020 B1MG Kick-off
Outcome: All the project board mobilised. Review and agree plan for the year ahead.
WP6/All ELIXIR Hub
October 2020 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EAPM
January 2021 B1MG Personalised Medicine Delivery (country visit)
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 University of Tartu
March 2021 B1MG Secure Cross-Border Technical infrastructure
Outcome: Synthetic human datasets for safe cross- border testing.
WP4 Uppsala University
April 2021 B1MG Personalised Medicine Delivery. Country Visit 2
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 ELIXIR Hub
October 2020 B1MG Personalised Medicine Delivery. Country Visit 3
Outcome: Capacity building, Mirror Groups and sustainability.
WP5, WP6 INSA
June 2021 B1MG Secure Cross-Border Technical infrastructure
B1MG-OG F2F meeting

Outcome: Security on federated data access processes.
WP4, WP6 CSC
June 2021 B1MG ELSI Stakeholder Workshop
Outcome: Security on federated data access processes.
WP2 ECRIN
September 2021 B1MG Personalised Medicine Delivery. Workshop 1
Outcome: Capacity building: B1MG Maturity level model, indicators, processes.
WP5, WP6 INSA
September 2021 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EMBL
September 2021 B1MG Secure Cross-Border Technical infrastructure
Outcome: Synchronicity between regulation and technology.
WP4 CNRS
November 2021 B1MG Personalised Medicine Delivery. Workshop 2
Outcome: Capacity building: Harmonising economic evaluation models. Sustainability.
WP5, WP6 DTL Projects
November 2021 B1MG Summit Open event
B1MG GA meeting

Outcome: Open consultation with internal and external stakeholders; GA meeting. Review and agreed plan for the second half of the project; EC review meeting.
WP6 (All) ELIXIR Hub
November 2021 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EAPM
December 2021 B1MG EC review meeting
Outcome: Review project progress and preparation for the B1MG summit and the mid-term review; EC review meeting.
WP6 (All) ELIXIR Hub
January 2022 B1MG-OG F2F meeting
Outcome: Review EC feedback. Review and agree a plan for the second-half of the project.
WP6 (All) ELIXIR Hub
March 2022 B1MG Secure Cross-Border Technical infrastructure
Outcome: Identify the barriers: existing cross-border data discovery and access solutions.
WP4 CRG
September 2022 B1MG Secure Cross-Border Technical infrastructure
Outcome: Interfaces for cross-border interoperable services.
WP4 University of Milan
December 2022 Framework Stakeholder Coordination Roundtable
Outcome: Stakeholders engagement: requirements, consultation, validation.
WP1 EMBL
March 2023 B1MG Secure Cross-Border Technical infrastructure
Outcome: Healthcare and genomes - capacity building for Europe.
WP4 University of Ljubljana
June 2023 B1MG Final Review
Outcome: Final project review meeting.
WP6 (All) ELIXIR Hub

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