Resources

The B1MG project started in June 2020. As the project progresses we will be adding publications, publicity materials and the project deliverables to this section.

Publications

Genomic Data Sharing Policy Brief
Screenshot of 1+MG genomic data sharing
1+MG HEOR Workshop Summary
Screenshot of 1+MG HEOR Workshop Summary brief
1+MG HEOR Summary Brief
Screenshot of 1+MG HEOR Summary brief
Genomics Policy Brief in Healthcare
Screenshot of 1+MG HEOR Summary brief

Outcomes

Proof-of-concept for the rare diseases use case

Videos

Country visits (2021)

In the first half of 2021 the B1MG project conducted virtual country visits, to find out how different countries in the project managed and used genomics data in healthcare. There were three country visits: to the UK, Estonia and Finland. Each visit also included flash talks from other countries: Belgium, Bulgaria, Denmark, Hungary, Latvia, Lithuania, Portugal, Spain and Sweden.

The country visits were organised by Work Package 5 of the project. The goal was to exchange ideas and foster creative solutions for using genomic data in healthcare. These ideas will help the Work Package develop a roadmap for the adoption of genomic data in healthcare across Europe.

You can also find the full report here.

UK visit

Screenshot of UK visit video

(March 2021, 12 videos)

Estonia visit

Screenshot of Estonia visit video

(May 2021, 10 videos)

Finland visit

Screenshot of Finland visit video

(June 2021, 10 videos)

Flash talks

Screenshot of the flash talks video

(9 videos)

Deliverables

The project deliverables are all reports, and they will all be public except D6.2 (Project Data Management Plan). This is a report for project members only.

Links to the deliverables will be added as they are completed. You can find more details about the deliverables and the tasks that produced them in the Work Packages section.

Deliverables are also published on the B1MG Zenodo community.

Name Number WP
September 2020
Project Handbook 1v0 D6.1 WP6
October 2020
Document describing the operational organisation and processes for the Stakeholder Coordination Group (SCG) D1.1 WP1
November 2020
Project Data Management Plan (confidential) D6.2 WP6
Communication Strategy D6.3 WP6
May 2021
Generation of a stakeholder portal within the project webpage containing the information resulting from the activities of the SCG D1.2 WP1
First yearly report on SCG recommendations to the 1+MG national mirror groups to facilitate genome/ clinical data integration, specified to the 1+MG Use Cases. D1.3 WP1
Quality metrics for sequencing D3.1 WP3
Phenotypic and clinical metadata framework - 1v0 D3.4 WP3
Documented best practices in sharing and linking phenotypic and genetic data - 1v0 D3.7 WP3
Secure cross-border data access roadmap - 1v0 D4.1 WP4
Analysis and assessment of mirror groups D6.6 WP6
September 2021
Project Handbook 2v0 D6.4 WP6
Policy briefs - 1v0 D6.8 WP6
January 2022
Catalogue of met and unmet use case WGs requirements 1v0 D7.1 WP7
May 2022
Second yearly report on SCG recommendations to the 1+MG national mirror groups to facilitate genome/ clinical data integration, specified to the 1+MG Use Cases. D1.4 WP1
Citizens engagement and public trust in genomic data sharing D1.6 WP1
Best practices for Next Generation Sequencing D3.2 WP3
Phenotypic and clinical metadata framework - 2v0 D3.5 WP3
Documented best practices in sharing and linking phenotypic and genetic data - 2v0 D3.8 WP3
Secure data access demonstrator D4.2 WP4
B1MG maturity level model and country-specific alignment within the model D5.1 WP5
Guiding principles and best practices examples for mirror groups D6.7 WP6
September 2022
Report of ELSI Stakeholder Meetings D2.1 WP2
November 2022
Catalogue of met and unmet use case WGs requirements 2v0 D7.2 WP7
March 2023
Policy briefs - 2v0 D6.9 WP6
Report on sustainability design and funding routes for the delivery of PM cross-border D6.10 WP6
Project Handbook - 3v0 - final version and lessons learnt D6.5 WP6
April 2023
B1MG recommendation on citizens engagement and public trust in genomic data charing D1.7 WP1
Catalogue of met and unmet use case WGs requirements Final D7.3 WP7
October 2023
Third yearly report on SCG recommendations to the 1+MG national mirror groups to facilitate genome/ clinical data integration, specified to the 1+MG Use Cases. D1.5 WP1
Policy document for a genome data sharing initiative D2.2 WP2
Report on legal set-up including Data Protection Impact Assessment (DPIA) D2.3 WP2
Report on data access and governance framework D2.4 WP2
The B1MG data analysis challenge D3.3 WP3
Phenotypic and clinical metadata framework - 3v0 D3.6 WP3
Secure cross-border data access roadmap - 2v0 D4.3 WP4
Roadmap and guidance tool for countries D5.2 WP5
Economic models methodology and case studies D5.3 WP5

See also: